Before I go on, I want to thank all of you for the response to my last post. Once again it showed me just why I continue to share my story – and that I also have a truly wonderful group of readers. You guys totally rock.
As you can tell from the title of this post, today is the first day of Cystic Fibrosis Awareness Month. My mission ever since I became involved with the foundation has been to raise awareness. Over the years it’s become apparent to me just how little people know about this disease – and I want to change that. Especially because I believe that people are more likely to support a cause they understand.
Yesterday on Facebook I asked my friends to post any and all questions they might have about CF – both my journey with it and the disease in general – and I got great questions (some I’ll expand on here throughout the month). I thought the perfect way to kick off Cystic Fibrosis Awareness Month would be to offer the same thing here: What questions do you have about CF? What would you like me to talk about so you better understand the disease? (This is a judgement-free zone. As they say, there’s no such thing as a dumb question.)
So let’s get started! Leave your question in the comments and I’ll answer them in a post on Monday.
11 thoughts on “It’s May… And Cystic Fibrosis Awareness Month!”
Is there pain with all the mucus in your chest? Does the vest make the pain worse? I can imagine if it does, that was a huge reason to avoid the vest.
Are you able to have children when you have CF? Are there precautions you need to take in order to have a baby? I know with some diseases there are risks with being pregnant and your health and/or the baby’s health.
Are there exercises or other natural things you can do to lessen the symptoms of CF?
How do you draw a balance between being a champion for your disease and trying not to be defined by your disease?
Reblogged this on Thoughts, Fears, Hopes, Dreams, Believers and commented:
This hits home…my niece is 4 years old and was diagnosed with Cystic Fibrosis when she was about 5 months old. I love to hear uplifting stories of this disease.
When are the times, or are there times, when you forget you have CF?
Hi Kat : ) I love the Great Strides walks we do to raise awareness, just curious if there are any additional events or other ways we can get involved locally?
[…] here for Steve’s fundraising page and here to ask a question on yesterday’s post. Thanks for watching and supporting and being overall […]
Hey Kat! Do you feel like CF limits you from doing things on a daily basis? Not necessarily big life changing things, just little daily social events or activities?
[…] the video, I mentioned I would answer your questions from Wednesday’s post today. Unfortunately, I ended up having a very minor medical procedure today (non-CF related), […]
[…] received some fantastic questions from last Wednesday’s post. A BIG thank you to all who reached out. Cystic Fibrosis Awareness Month is about learning, […]